Event name: WDSC 2018 Pre-Congress Health Symposium
Organised by: Down Syndrome International
Advised by: Down Syndrome Medical Interest Group – UK and Ireland, Down Syndrome Medical Interest Group – USA
Supported by: Down’s Syndrome Scotland, Down’s Syndrome Association, Down Syndrome Ireland
Attendees: Healthcare providers and researchers with a special interest in the clinical care of people with Down’s syndrome.
Location: Scottish Event Campus, Tuesday24th July 2018
Time: Registration starts 9.30am. Programme starts 10am.
We are delighted to announce that top healthcare providers working with children and adults with Down syndrome from around the world will meet for a 1 day symposium prior to the start of WDSC 2018. This symposium is a rare opportunity for those who specialise in clinical practice and research on Down syndrome to come together and consider current, important developments in prevalent medical conditions.
10am – 10:30am: Speaker
Emerging issues relating to coeliac disease in children with Down’s syndrome
Dr Peter Gillett, Consultant Paediatric Gastroenterologist, Royal Hospital for Sick Children, Edinburgh, United Kingdom Chair of BSPGHAN Coeliac Group
10.30am-11.15am General discussion on this topic
Adult health screening – Should we be screening for conditions less common in Down syndrome which are recommended for the general adult population?
Dr Brian Chicoine, Medical Director, Adult Down Syndrome Center, Advocate Lutheran General Hospital, Park Ridge, IL, United States
Dr Peter Bulova, Director, University of Pittsburgh Adult Down Syndrome Center, Pittsburgh, PA, United States
12.15pm-1pm General discussion on this topic
Sleep disordered breathing in children with Down’s syndrome
Dr Catherine M. Hill, Associate Professor of Child Health, University of Southampton Chair of the Faculty of Medicine Ethics Committee and Honorary Consultant in Paediatric Sleep Medicine
2.15pm -3pm General discussion on this topic
3pm- 3.15pm Refreshments
Mental health in adults with Down syndrome – prevalence, presentation, grief/bereavement, impact on caretakers/family, comorbid medical concerns, treatment approaches
Dr Anna Esbensen, Associate Professor, Research Director, Jane and Richard Thomas Center for Down Syndrome, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, United States
Dr George Capone, Director Down Syndrome Clinic and Research Center, Kennedy Krieger Institute, Baltimore, MD, United States
4pm-4.45pm General discussion on this topic
4.45pm Close of meeting.
Information for Delegates
Delegates will be seated in cabaret style table set up and, following an initial discussion, will be encouraged to share with the whole group their thoughts on the topic questions, so that hopefully we can reach a consensus view.
The symposium aims to bring together leading professionals and thinkers to take the conversation forward in areas where it is merited, all with the aim of improving healthcare outcomes.
If you are a healthcare provider who works with people with Down syndrome this is a “must attend” event and your input on the day will be very much appreciated.
You can register to attend this symposium at the same time as registering your attendance to WDSC 2018. There will be a small extra charge for attending this event, payable on delegate registration.
Once registered you will be included on a mailing list for regular updates. The event organisers will be in contact with you prior to the event with more information, including questions to consider for general discussion and speaker presentation materials where available.